Dreamsome

I had a dream about my mother on Monday night. Listen, you don't need to roll your eyes. I usually start to glaze over when someone starts a story with, "So, I had this crazy dream!"

I GET IT.

But, if I don't write about it, images from it'll keep rolling around my brain like a coin dropped into one of those spiral wishing wells at the mall.

So.

We were sitting at a picnic table; my father was there too. My mother looked just as she did before she got sick, and that's the first time that I've seen her like that in a dream. Honestly, I've only dreamed about her three times since she passed away, and the other two times, she appeared ill, wearing her white baseball cap, and she was kind of... well... droopy. Beaten. Tired.

But this time, she was just as I've seen her a thousand times: enjoying the sun, wearing a striped t-shirt, glasses, and sporting a granny ponytail. We didn't talk. There were no life truths that I told myself via the dreamscape. But it felt good to see her animated and not have it be through a computer screen..

It felt good. Reassuring. If you believe in the heebie-jeebie, which I do, it's a message that she's OK. If you believe in the everyday, which I do, then its a message to myself that I'm getting to be OK.

Either way is good, no?

A Year

A year brings a truckload of differences. Oh, for Chrissakes.* How trite is that? Who doesn't know that? My six-year-old knows that. In one short year, he goes from 1st to 2nd grade. Big changes!

This past year brought big changes. Mostly suck-o ones. It was a year ago today that I spent the day in the hospital with my mother, learning that she had terminal cancer. Jump back in the archives, should you need to. I'm too tired to link.

I miss her every day. I cry many of those days. Not for my loss, though I feel that keenly. But for the suffering she had to go through, the indignity of it, the sadness that permeated her bones at having to leave all of us so soon.

I thought by pushing myself this week, by working 14-hour days, I could avoid feeling anything. Stupid, is what I am.

*I have a limited array of swear words. I LOVE listening to a accomplished swearer, don't get me wrong. But somehow, I can't let it fly myself. So I satisfy myself with these pseudo-swears, which are mostly of the blasphemous variety.

Breaking

I've been feeling off the past couple of days. Not like me. Glum. Ever feel like that? Like you know that you are not the version of you that you are accustomed to being, and not really being able to find your way out of that?

I'm pretty sure that this will dissipate in the next couple of weeks. See, we're slouching toward the anniversary of the start of the hardest year of my life, and the post-traumatic stress, it is rearing itself. Ugh. I shouldn't use terminology coined during Viet Nam to explain my flashbacks to this time last year, because it's not like I saw anyone's face get blown off in a rice paddy.

It was just about a year ago that Big Sister called to say that our mother was not well. The whole story is here. I don't know if I'll be feeling this... messy for the next six months, 'til we hit the anniversary of her death. I think it more likely that it will pass soon, and that maybe it's just that this particular couple of weeks is triggering it. The wild contrast of the benign sameness of this time of year -- big deadlines at work, visit to Cleveland for the 4th, birthday party planning of the Boy -- with the awful gaping absence of my mother is hurting my head.

It could also be that I'm feeling guilty that I don't have much of myself to give to anyone besides my husband and little ones. I bring this up because my other sister -- Special Sister -- needs some nurturing right now. I call her Special Sister because she is mentally challenged. Basically, she is an eight-year-old in an adult body. She's very sweet, incredibly thoughtful, somewhat devious, doesn't like chores, and needs attention. So, yeah, an eight-year-old.

I see Special Sister at least once a week, chat with her, try to give her a chance to open up a little. So, I do keep tabs on her, but it's not like I'm taking her to a social worker to determine what kinds of programs she has access to, I'm not signing her up for personal trainer appointments, I'm not getting her involved in classes. That'd be almost a full time job in and of itself.

Anyway, my parents have a wonderfully lovely next-door-neighbor who spends loads of time with Special Sister, taking her to church events, shopping, and things like that. This neighbor will send me and Big Sister e-mails every once in awhile when she is concerned for Special Sister. And I just... I can't right now. I'm not feeling up to it, which then makes me feel like I'm failing her. Clearly, I am a masochist.

You might wonder where my Dad is in this? Well, first, he's eighty. So, I kind of give him a pass, because, Christ, he's EIGHTY. Second, frankly, he's not really built for this kind of thing. He's not gruff, and is certainly affectionate. But oh my God, is he laissez-faire. And Special Sister needs structure, and lots of it. I already feel responsible for her, so to get an e-mail from the neighbor makes me think that other people feel like I am responsible for her too, which adds a layer of guilt to all of this.

A Thousand Little Quiet Devastations

NOTE: I'm continuing to release these old posts, the ones that I wrote right after my mother's death. I'd thought about refining them, editing them, but I won't. It'd be false. I'd be gilding them with a perspective gained in these last three months, and that wouldn't be true to the feeling behind them. Don't misunderstand: the feelings that motivated the writing are still here, a little reduced by time, like a sauce that's been simmering. But those feelings still overflow this inadequate vessel unexpectedly and often. Anyway I leave the old posts incomplete, because that's how I feel these days: incomplete.

Life is a series of befores and afters. Watershed moments, some call them. In the before, you reside in ignorance or anticipation, and in the afters, oh those afters.... The afters run the gamut between joyous and devastating, and right now, my feet are firmly planted in devastated terrain.

My mother passed away on New Year's Eve, 2010, the before-iest day of the year. The after will last the rest of my life. And in this after, I'm finding that the little devastations pierce my heart most thoroughly. Maybe it's because the big ones are too much right now, and I can wrap my head around the little ones more easily. Who knows? And maybe it's because the little ones seem like they will be unending, some daily, innocent reminder of my loss. I'm compelled to document them, though, because I don't want to forget, these things that blindside me with sadness.

Chancing on a photo of a smiling her that rests on my digital camera from my daughter's birthday in November...

Finding her voter registration card from 30 years ago in her wallet, a token of our former residence, the home that served as a backdrop to all of our childhoods...

Putting together the digital slide show of her life for the funeral services, her life flashing before my eyes. And in those photos, seeing unending delight in her eyes... How had I not seen that before? What a happy woman she was? What a contented woman she was? And beautiful. How did I not realize how beautiful she was?

Realizing that my last real conversation with her, when I knew that she knew she wasn't confusing me with someone else, was about gifts she wanted to get my children for Christmas.

Watching my older sister give her permission to die, telling her that we'd be okay, and that we'd miss her, but that she didn't need to put herself through this anymore.

Shopping in the infant aisle at the pharmacy, desperate to find any tools that might help us feed her better, and settling on baby spoons and eyedroppers.

Spoon feeding her water when she could no longer sip from straws. Then moving to sponging water into her mouth when she could no longer sip from a spoon.

Hearing my father tell the hospice chaplain that she'd already received Extreme Unction.

Holding her hand when she died.

Realizing that none of the dresses from the weddings of her children would really fit properly because she'd lost so much weight in the past couple of weeks.

Seeing the blanket that I'd purchased for her for Christmas, that covered her all during her stay in hospice, draped over her recliner at my parents' home.

Going through her jewelry and not knowing if the detritus mingled among the gold -- a Lite Brite peg, a barrette, a Lego -- were casual reminders of our childhoods, or evidence that she never cleaned out that jewelry box.

My daughter, hugging the photo album of her Baptism to her chest as she slept, the night before my mother died. There were several pictures of the two of them together in that little album.

Seeing that my father has started using Mom's side of the bed as a way station for paperwork, which I interpret as his needing to fill that space with something, anything.

My daughter, hearing me sniffle, say that I shouldn't be sad because Grandmom wasn't in pain anymore and is in Heaven, something I certainly hadn't said to her (but her daycare provider had, showing me that my daughter required some comfort that I hadn't provided).

My brother's voice quavering as he read Ecclesiastes 3:2 during her funeral service.

Seeing the mausoleum space, the "filing cabinet," as Mom called it, swallow up her casket as the three burly graveyard workers pushed it to the back.

Finding the dress that Mom had requested she be buried in, after the fact, tucked away in a drawer far away from the hanging rack, where she'd told me it rested back in the Fall.

There's more. There will always be more. I pan my day-to-day life for the sad elements, surprising myself when I don't uncover them, annoyed with myself that I can't just eat Butterscotch Krimpets without analyzing if they make me upset because Mom liked them too.

This year, her absence will render all sorts of firsts and milestones bittersweet. I'm okay, all things considered. It all happened in a year. ONE YEAR. Her first brush with a health problem, one that required being seen by a doctor, was last April. She had a chest cold, was exhausted beyond anything else she experienced, and was diagnosed with pneumonia. She couldn't go to my nephew's first birthday party the first weekend in May because of it, but was recovered enough by mid-month to go to my son's Baptism. Then July, the diagnosis came, the ensuing flurry of treatments and tests and meetings, the supposed all-clear in November, and then her rapid decline and death in December.

I'm still reeling. I think I'm okay, then something stupid will punch me in the gut, like last night when I made chicken parmigiana, one of the meals in her rotation of Sunday dinner menus.

I think I'm where I'm supposed to be. My mother died. It's awful. I'm allowed to be sad, and I don't paint on a smile to fake it 'til I make it or anything like that. But the sadness hasn't trumped all else. It's not who I am. Who I am is my mother's daughter, with an outrageous work ethic, and a ferocious need to make sure things are stable for the family. Doing those things makes me feel better. I feel the grief when it surfaces, I push off feeling it 'til it's more convenient. I function. I find joy in life,I laugh with my kids, I delight in my husband and family, I cook dinner, help with homework, fold laundry, scrub bathrooms, take walks, go on dates, laugh at movies, take bubble baths, lose myself in a good novel, put photo albums together, help my sister look for houses when she moves back, go to work. I don't ask what the point of everything is, I haven't suddenly gone all churchy or gotten angry with higher powers.

But this... This has been awful. There's no way around that. One of my friends, someone who's been through this, which is really the only way I think you can understand it, wrote me the best note. She said, "Your mother deserved more time. You deserved more time with her."

So very, very true.

Pandora's Box

So, here's the thing: my mother passed away on December 31, 2010 after an awful, terrible pummeling from brain cancer, spinal cancer, and small cell lung cancer. Since then I have been stopped up like a three-year-old who eats nothing but steak. I did write a few posts in the couple of weeks after her passing, which I'll share here when I feel OK about it. These are not shiny samples sunshine and optimism. Sorry. Here's one of 'em.

When I was eight years old, I became enamored of my older sister's English text book. She was a sophomore in high school, and they were studying Greek myths. (Tangent: Hellz yeah, I was reading high school literature when I was in third grade.)

Back then, I thought it was kinda friendly of the gods to bundle Hope in with the demons, disease, and pestilence showered upon humankind when Pandora opened that box. A little ray of sunshine mixed in with the thundersnow. It was nice to think that no matter what happened, no matter how bad things got, people could always find some comfort in their hope for something better to come along.

Now?

Now I realize that Hope is kind of a tricky little bitch. Because while you are hopeful, you can indulge in denial. Once you settle up with reality, though, you can raze the earth, rebuild, move forward.

Eulogy

I wish I were a poet, because the words that I have to memorialize my mother seem lumpy, awkward, and ham-handed. Insufficient, really.

My lack of articulation is ironic, because during Mom’s illness, I learned to swim in a new vocabulary. Most of those words were unappealing, though a few of them were hopeful. All of the words, good and bad, were sprinkled throughout the updates that went out to most of you, the collection of family and friends who worried for her. So it only seemed right to offer this final missive, or “Mom Update,” to all of you.

We’ve always known Mom to have a lot of spirit, a mischievous glint in her eye, and to season her stories with more than a few embellishments. You know, just to make it more interesting. Oh, and she was loud. Let’s not forget loud. I think anyone who was able to call all of her children home at night without the aid of cell phones or bullhorns can be called loud.

All of that is to say that she was full of vitality. Or as she might have said, “Vim and vigor.” The snapshots that decorate every inch of every wall in my parents’ home are infused with evidence of this. And if pictures are worth a thousand words, then Dad has provided at least a million words about Mom. Nearly every one of those photos show her holding at least one child, laughing, making food, hugging someone, comforting someone, or picking crabs. In short, she enjoyed life.

Contrasting that woman – the one who could pull together a dinner for twenty-five in an hour without having to go shopping or asking for help – with the woman suffering the effects of cancer and the related treatments… Well, it’s night and day.

I think that we can all agree that watching Mom’s decline over the past six months has been heartbreaking. But Mom never stopped being, well, Mom. During her initial hospitalization in July, Mom made it clear that she didn’t want to be in the hospital. She didn’t want to be in a bed, being fussed over, or considered sick. She tried to make a break for it nearly every day. I think there may have been bribes.

While she was still in the hospital, though, she was worried about the rest of us. For example, even though her brain was swollen and peppered with tumors, she wanted to make sure we were eating. So she gave me a detailed order for what to pick up for everyone. Another time, she handed over her grandmother’s ring to Dad to have the stones set for her two most recent grandbabies. She’d realized she hadn’t included them yet and didn’t want them to be left out.

This continued to be true after she returned home and regained her clearheadedness. The last real conversation I had with Mom was at the tail end of a Sunday visit. It was December 12th, just before she went to the hospital this last time. My husband had packed up the car and the kids, and I was on my way out the door. Mom stopped me and said, “I need to know what to get all the kids for Christmas.” We spoke about it briefly, and I offered to do the shopping for her. We now know that the cancer had bloomed again, and despite that, she was focused on her grand kids.

This past half-year shouldn’t eclipse Mom’s previous sixty-seven years. She wouldn’t want us to remember her with a walker, or breathing heavily, or without hair. She’d prefer us to think of her singing the ‘Foot Foot Song’ or playing catch in the backyard. But I share the stories from her illness with you because, ultimately, I think who we are when the chips are down is probably who we are at our core. And with Mom, despite the pain, the bone-crushing fatigue, and the body not working the way she wanted it to, she stayed true to the caring, gracious, devoted, funny woman that she was.

I am grateful for the woman that she was, and am honored and privileged to have been her daughter. My brothers and sisters and I have been commended on how dutiful we’ve been during all of this. But none of what we’ve done was performed out of a sense of duty. It was out of love for both of our parents. Returning the love and the help that they have given us. Back in May of this year, before all of this began, I’d asked Mom to make a ham for my youngest son’s Baptism. Who does that? A side dish or a dessert, sure, but who asks someone to bring the main course? But Mom agreed without skipping a beat. I thanked her, perhaps too effusively. She laid her hand on my arm and said, with a smile, “It’s my pleasure.”

So, I wanted to say in return, it was our pleasure, Mom. Our pleasure.

Things I Didn't Need, Necessarily

Today my mother told me what she wants to be buried in. So, that's awesome.

And the ensemble of her choosing? The gown she wore to my sister's wedding.

Have You Ever Heard of Plato? Aristotle? Socrates? Morons.

Have you ever really noodled over a concept, a philosophy, a theory, and upon the crystallization of an idea, realized you are a huge dummy because your ideas are not at all new or unique, and in fact have likely been featured in fortune cookies? I have!

Let me explain.

In the continuing aftermath of my mother's cancers, I have pondered. Oh, how deeply I have pondered Very Important Shit. (I stole that from Zadie Smith. See? Me and the originality, we are not as one.) The end result of all of this pondering? EXACTLY the things I have been taught since I was two. I guess I'm a slow learner. Nah, it's just that I didn't have the life experience to understand these truisms and take them to heart. Which (a) shows you that experience is the best teacher, and (b) well, that experience is the best teacher. I guess I'm just trying to emphasize that whole experience thing.

Since I know you are wildly curious, here's the V.I.S. that I have learned during my mother's pas de deux with Small Cell Lung Cancer that has metastasized in the brain:

1. Don't be a douche. See? I told you these were not going to earn an A+ for originality. But the sentiment stands. Just don't be a douche in life. I don't think I need to enumerate the whys and wherefores of this one. Christ put it a little differently, of course, but I think most would appreciate my 21st-century-ization of the Golden Rule.
2. Don't live in isolation. There's strength in them thar numbers. Sounds corny, I know. But humans are social beings, and oh my LORD, does Mom perk up when she has visitors. But if you don't know anyone well enough that they'll come visit you in the hospital or in your convalescence, well, you won't exactly have a network of support, will ya? (For a clear illustration of how it's important for people to have friends, see the 1995 cinematic meh-sterpiece, The Net.).
3. Be close to those you love. Physically close, I mean. If circumstances prevent you from living close by, have a lifestyle that affords you the ability to drop everything and be with them. I would have lost my ever-loving mind if I couldn't be with my parents through this. Just ask my sister who lives in England. Phone calls are great, but can't ever, ever replace the realities of being there when your mother needs someone to help her go to the bathroom, but her mind is so far gone she doesn't know where she is, and the only faces she recognizes are those of her husband and children. If you have kids, you have probably felt this when you take them to the doctor for shots or something. You know that they have no idea what's going on, but your presence is a comfort to them. Now, imagine handing that unpleasant task off to someone else. Your kid has no idea what's going on, AND he has no one to turn to for reassurance and hugs.
4. Let people in. I'm still working this one through... Obviously this idea relates strongly to the whole not living-in-isolation thing. Whereas that one was just about enjoying some one's company, though, this one is about accepting help. I'll be the first to admit that I struggle with this because I am fiercely independent. Asking for or accepting help is an indicator that I can't handle my bidness, right? I mean, I get frustrated when IKEA recommends a "team lift" for certain packages. HOW DARE THEY? The truth is, though, there's grace in accepting help from someone. People like to feel needed. I'm not just talking about someone helping by doing grunt work like laundry or scrubbing toilets, though that's appreciated. It's also about inviting people over because you need their company, to confide in them.

That's all that I really have for now. This all sounds really selfish, I know. Like the only reason to be nice to people is that you'll need something from them. The reason that you should be nice to people is that, given the choice, wouldn't you rather live in a world where people are kind to each other? But an awesome side effect of all of that kindness is that people will be willing to help you when you are in your time of need. No matter what, you WILL have a time of need. I'm not Mistress Doom and Gloom here, but that's something you can bank on. Even if you've buttoned up your life circumstances pretty neatly and are healthy, and moneyed, and have 5-year-plans, life STILL has a way of kicking you between the eyes once in awhile.

I guess you can tell that all of this...well, it's been too much for a white girl to handle. My cup runneth over with awfulness. And if people hadn't come out of the woodwork asking what they could do, how they could help, I don't know what I would have done. I had to accept the help, and I'm all the better for it. The help comes in various shapes and sizes... Calling my parents to check in on them...  Taking dinners over to them so that they don't have to cook... Listening to me babble on about it so that I don't have to pay a therapist (yet)...

I don't mean to imply that I have sole ownership of my mother's care. Not at all; not even close.  Please, please don't perceive that.  My six siblings and their spouses have all been contorting their schedules to help my parents. No one of us individually could do it; it takes all of us, really, and I'm so grateful not to be going through this alone.  That's so important, especially since we are all grieving and enduring this prolonged panic.

Writer's (Un)Block

I've been writing a lot lately. Pages upon pages, really. The sporadic posting here is no evidence of that, of course. Why? Because the writing all centers around either (a) information about my mother's health, or (b) software system requirements for work. Both of which are written in the same (fairly) dispassionate style...

...Mom's due for her next round of chemo, and depending on blood cell counts, will start her third just after her 67th birthday...

...The system shall provide counts of students' achievement as relates to the school's adequate yearly progress goals, broken out by grading period...

There's no parallel in these topics, so I won't try to fit a thematic square peg into a round hole. I just... I'm project managing my mother's health care, and it skeeves me out.

For the better part of my working life I've been assigned to tasks/problems/projects because I'm willing to ferret out solutions. Most of the time, when you tell people that you manage projects, there's no archetype that they can wrap their heads around. Teacher? Sure. Doctor? Absolutely. Police officer? No problem. Everyone knows people like that in their own lives, so they understand what you do and the kind of person you must be in signing up to do that kind of work. But project manager? If anything, that title calls to mind an ineffectual weenie who doesn't actually produce anything but anxiety among the people who actually get the work done.

It's been a secret desire of mine to have a job that makes sense to other people, and on a related note, a skill set that I can employ in service of others. It's the Jesuits' influence, I s'pose.

It might sound stupid, but I'm jealous of the brother who's a handy-man and can re-wire a house and get it up to code, of the brother who's a mechanic and can get your rust bucket fixed no matter what ails it, of the other two brothers who can rip your computer apart and put it back together so that it runs better than ever. Me? I'm handy with a power tool, but am wise enough to recognize that professionals should be called in for the really heavy lifting. Otherwise, I am just one of those goobers who tells herself that her shiny personality and wit will help people through tough times.

Right now? I'd rather be an oncologist than Oscar Wilde.

If You Ask Me How I Am, I Will Cry

Sounds dramatic, I know. But it's true. Right now, if you talk to me about the weather, or parenting, or traffic, I will happily chat along with you. I may even appear to be carefree. But the sadness, the worry, the grief is lurking just under the surface. Scratch at it a little with an innocent question like, "How are you?" or with a expression of concern for me, and the tears will well up like Jed Clampett's crude.

So, if you care about me, please be rude to me so that I don't have to embarass myself with quavery voice.

Live from Cancer-ville

Mom's diagnosis is the same. I appreciate that the doctors were so blunt with the worst-case-scenario from the outset of all of this. Stage IV lung cancer that has metastasized in the brain. Some doctor in the future will ask me about my family medical history for my medical record, and this will be my answer for how my mother died. That is awful to contemplate, so I don't. Not really.

She's started chemotherapy, though I'm not entirely sure that she really wanted it. I think Mom always knew that her endgame would go this way, and to prepare, she told each of her seven children -- in separate, one-on-one conversations -- that if she were ever diagnosed with a terminal illness, she wouldn't fight it with aggressive treatments. She said she'd just give into it and live the rest of her days as comfortably as possible.

Yet in our family meeting she said, "Let's do it," when asked if she wanted to undergo a round of chemotherapy. A family meeting, for the uninitiated, is an awful, medical all-cards-on-the-table meeting wherein the doctors inform loved ones, in the presence of the person who is ill, what the treatment options and recommendations are. I call it awful because it has all the hallmarks of a business meeting -- agenda, packets of information, next steps -- but the meeting is about your mother's life. So you hear numbers, percentages and time frames and things like that, but it's not about whether your company is in the black. It's about whether your Mom is going to make it to her next birthday.

But you can have an idea of how you want to handle these things and change your mind about it, right? When you're prepping to have a baby they tell you that you shouldn't firmly decide whether or not to have an epidural because you can't really know for sure how you'll feel when you're in the thick of labor. So I have to think this is true when battling cancer.

I suppose I'm mixed up about this because the lesions in Mom's brain are causing disorientation, forgetfulness, and things like that. So, for lack of a better way to put it, I don't know if Mom's agreement to undergo chemotherapy is HER decision, or the lesions'. I don't know that someone should be included on her medical decisions when she sometimes thinks it's 2003 and she's in the hospital for a heart attack.

Guess that's all water under the bridge, though, because she's completed her first round of chemotherapy.

Since she's done with that, she was discharged from the hospital. They were recommending that she go to an inpatient physical therapy rehab center. The Army of Brain Lesions have caused weakness and a lack of coordination, which caused her to fall at the house in the middle of the night last Monday, which in resulted in a banged-up knee that swelled to the size of a volleyball. All of this adds up to need to learn how to work the body she's got right now. But, Mom was desperate to come home, and Dad is desperate to do right by her and follow her wishes as best he can, so they selected an alternate option that the hospital outlined: discharge Mom to home care, and send a nurse and a physical therapist to her home three times per week, for an hour at a time.

This has my siblings and me very, very worried. My father is not capable of doing this on his own, and we of course want to help, but I don't know if we have the facility for this kind of thing. He has a decent chunk of change saved up, but I'm not sure if he can afford long-term 24/7 care, which, frankly, is the only thing that would ease my mind and would also satisfy my mother's desire to be home.

Today, we have another family meeting among the kids to divvy up responsibilities -- helping my father, getting Mom to-and-from appointments, making sure the prescriptions get filled, and things like that. I feel incredibly, outrageously lucky to have family -- my brothers, their wives, my sisters, my brother-in-law -- who can help with this kind of thing.  They are all such wonderful people, all with the best hearts.I appreciate this beyond all measure, really. 

I also feel very lucky to be geographically close to my mother. One of my sisters lives abroad, and it's crushing her soul not to be able to be here to see Mom, help her, talk to her. I recognize that our situation is better than most in terms of time, and money, and support. Cold comfort. It all still sucks though. A lot.

Raw

If you came here looking for WWE information, hie the here.

Otherwise, the title describes how I'm feeling right now. My mother is sick. Like really, really sick. And it's all shocking, but not really. Maybe this is how Cassandra felt when things she foresaw came true?

Let me explain.

In late April, my Mom was diagnosed with pneumonia. Not the normal time of year for that sort of thing, but it happens. She took antibiotics, she got better, done. In the second week of June, she and my father flew to England to visit my sister. The first week of the visit, she was her normal self. But the second week of the visit, she started slowing down, had shortness of breath, and basically took to her bed. She was fairly certain that it was pneumonia again, but kept pooh-poohing my sister's request that she go see a doctor. On the third day -- this would have been June 28, I think -- of my mother being completely wiped out, my sister and brother-in-law basically forced her to go to the doctor in England. He clinically diagnosed her with pneumonia, but urged her to have a chest x-ray when she returned to the States.

Why?

Because my mother is a smoker. For fifty years, she's been a smoker. Usually a pack a day. I've always been grossed out by the habit. Have you ever been around and ashtray while you're trying to enjoy Saturday morning cartoons? I have. And when I flounced onto Mom's comfy recliner, it would knock into the end table on which the ashtray sat, and specks of blue ash would mushroom up and out of the ashtray. Yuck.

So, this doctor was telling her that it could be more than pneumonia. Red flag. No, CRIMSON flag. VERMILION flag.

They flew home on June 30. I can only imagine what a nightmare that was for her. Unable to breathe properly, weak, and cramped into a coach seat on a transatlantic flight. My older brother picked them up from the airport and got them home.  He called me to reassure me that he'd gotten them, but I could hear her saying things like, "What are you doing in New York?" in the background.  That must have been so awful for him.

The next day, Mom was seen by her general practitioner, who took a chest x-ray. But, the results wouldn't be back until after the holiday weekend. They went home with fresh prescriptions, and Mom retired to the bed again. She was up and about a bit throughout the weekend, paying bills, eating a little here and there. So it seemed like she was on the mend, little by little.

Then she fell.

In the middle of the night on Monday night, she took a spill. My father found her in the bathroom and tried to help her up as best he could. He's seventy-nine and has a history of back problems, so it was not an easy endeavour. For most of Tuesday, she was in bed, and very disoriented. My husband and I had already decided to visit since it was on the way home after our holiday weekend visiting his parents. Luckily, we'd decided to leave our three children with my in-laws for an extended visit. Why luckily?

Because kids can get scared when you have paramedics tromping through the house.

We called an ambulance. As soon as I saw my mother, I knew she had to go to the hospital. One of my older brothers, got there a few minutes after us and agreed. Thank God he was there. My Dad didn't know what to do, and I would have only been playacting if I expressed any idea of what to do. 


Mom couldn't move. She'd wrenched her knee so badly, she couldn't support her own weight and was pretty disoriented. We helped her into a wheelchair that was leftover from my grandparents' convalescence and rolled her into the family room. The paramedics arrived very quickly and performed an exam of her. It was pretty clear that they were thinking she'd had a stroke. So was I, frankly.

I rode with Mom in the ambulance, but I had to ride in the front seat. It was a really long ride. We caught EVERY red light on the way, and the paramedic who was driving didn't turn on the siren. She wasn't an EMERGENCY emergency, I guess. He was a nice enough guy, and tried to make conversation. When I said we'd just gotten back from Cleveland, he decided I must be from Cleveland. This meant that for the ten minutes it took to get to the hospital, he would periodically ask me how I liked living in Cleveland, and whether I liked the Ravens. After the second or third correction, I just went with it and waxed poetically about the weather in Cleveland as compared to the muggy soup that is Baltimore's atmosphere.

Did I mention that it was like 105 degrees that day?

Once at the E.R., Mom's gurney was parked near the automatic doors. There was no room at the inn, which I found frustrating. I mean, if the hospital says it's receiving ER patients, shouldn't it, you know, RECEIVE them? But I was trying to be patient. Mom, though, kept fidgeting, pulling at her I.D. bracelet, wanting to get up. The automatic doors kept opening and closing, opening and closing. Elderly people in gurneys were strewn about the hallways, and it was so sad to see that they had no one with them. That firmed up my resolve that I wouldn't leave my mother's side. There was a young woman near us who was being questioned by a paramedic. He kept telling her that she was slurring her words, that they found a lot of mostly empty pill bottles, so they can only conclude that she had overdosed on something.

I couldn't help thinking that I SURE there's a HIPAA violation in there somewhere.

At one point my Mom said she had to go to the bathroom. She's had seven children, so the muscles Down There aren't super strong. Honestly, she knows where every public or store bathroom is within a five mile radius of her home. But she couldn't do it on her own, so I and a paramedic had to help her go. I literally carried my mother. It was not dissimilar to my daughter's potty-training routine, so thank goodness I had that under my belt.

I stayed with her until we had a room -- or rather an area -- in the E.R. Dad came back at that point. Any time there was an update, I'd text it to my brother and husband in the waiting room, and they would relay the information to our other family members. By that time, another of my brothers, we'll call him, had joined them in the waiting room. Doctors would periodically visit to examine her. We answered the same questions many, many times. My Dad offered too much information. Not inappropriate information. Just unnecessary. Like how he thinks that he might have caused some of the damage with Mom's knee because he has a history of sacroiliac problems, so he doesn't think he helped her up from the bathroom floor very well. And the bathroom, by the way, is a very small space. He was so, so overwhelmed.

Based on what they were asking, it seemed like they too thought Mom had a stroke. They recommended another chest x-ray, a head CT, and possibly a lumbar puncture. These things would tell us about pneumonia, stroke or concussion, and maybe meningitis. Dad and I awkwardly trying to pass the time while I furiously texted information to my brothers and husband.

Imagine my surprise when a beautiful curly-haired doctor came back and told us that based on what they saw with the chest x-ray and the head CT, that they believed Mom had lung cancer that had metastisized in the brain. This was four hours into our stay at the E.R.

Mom seemed to understand what was said. But I wasn't sure, because she wasn't wailing or gnashing her teeth, you know? Then another doctor came back to talk to her a bit more, and he asked if she understood what was going on. She looked at him and tearfully said, "I'm dying." The doctor seemed to slip out of Medical Man mode for a moment and said, "And I'm very sorry about that." Then he explained that she would be admitted, and that they'd need to do further scans and testing the next day. But that the average life expectancy is about five months.

Once they had an idea of what was going on, they could admit her. After she was nestled into her room, we all went home. I wanted to stay because I knew that she would be confused and lonely, but they said it wasn't allowed in her unit, the Intermediary Care Unit, which is a step down from Intensive Care.

There was weeping. All of the weeping I wanted to do at various points in the previous five hours came out at that point. I was trying to be strong for my Dad and my mother, but when it was just my husband and me... Well, he knows that I'm about as tough as dandelion that's gone to seed. So I could just let go.

I haven't cried like that for a long, long time.

The next day was, if possible, harder than the previous day. My mother had gone from the sharp tack that maintains the bills, the house, the everything, to someone who didn't know she was in the hospital, or why, and only wanted to go home. There were some hallucinations, as well. They did another CT to see if the cancer has spread anyhwere else, and to help guide them during the biopsy. Again, I spent the better part of the visiting hours in her shared room with my Dad.

Shared rooms, by the way? They stink.

Mom's roomate was hard of hearing, and during that second day, the first in the IMC, this woman's visitors would need to shout to be heard. Since my mother was easily distracted and suffering swollen brain dementia, she thought they were talking to her. And my mother is nothing if not social, so she'd talk back. She was making me laugh, because she'd kind of roll her eyes as if to say, "Jeez, these people clearly do NOT know up from down since they are talking to me like they know me."

We didn't get the results of the CT scan until yesterday, July 8. They said that based on what they saw, they weren't going to do just a biopsy, but something called a bronchoscopy. This will be done today, hopefully. They changed what they thought needed to be done because the mass on her lung is apparently really close to her airway, which has in turn partially collapsed the lung. This procedure will help clear the airway and deal with those problems, and at the same time they should be able to get a tissue sample to biopsy. So, better to do two procedures at once than to put her through two separate procedures. They may still have to do a regular thoracic biopsy if this doesn't produce results.

Ugh. Words that are now a part of my every day vernacular are ugly, lumpy, greco-latin words.

Visiting hours start in a couple of hours, so I'll head over then. I don't know what today will bring. Yesterday her cancer specialist doc told us that she MIGHT be able to be discharged this weekend and start radiation therapy for her brain lesions next week. That brings up a whole host of other realities that need to be dealt with, like how best to get her to and from and to make their house as comfy as possible for her.

And me? Well, I'm pretty crushed. I can't wrap my head around the fact that I need to start doing what I can to, for lack of a better way to express it, wrap up this mother-daughter relationship. I thought I'd have more time. That sounds stupid, doesn't it? I've already gotten more time with my mother than she had with hers. She's seen me grow into an adult, and succeed, and settle into a beautiful home and marry a wonderful man and have gorgeous, friendly children. And then I dissolve because my younger two probably won't remember her and how much she loved them, how she calls after every pediatrician appointment to find out how it went. And that I can't call her to ask if she'll watch them because daycare is closed, or if she could give me the recipe for her potato salad.

Oh, God, potato salad is going to make me cry for the rest of my life.

So that's where I am right now. We don't know everything about this THING that is eating her from the inside out, this thing that she opened the door to (most likely) because of a habit that was cool and harmless when she came of age. But based on educated guesses and likelihoods and averages, I'll be lucky beyond all measure if she can see my baby turn one in January.